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Bill 114, Nancy Rose Act (Paediatric Hospice Palliative Care Strategy), 2019

Shaw, Sandy

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Bill 114 Original (PDF)

EXPLANATORY

NOTE

The

Bill enacts the Nancy Rose Act (Paediatric Hospice

Palliative Care Strategy), 2019 . The Act requires the Minister of Health

and Long-Term Care to develop and implement a paediatric hospice palliative

care strategy for Ontario. The goal of the strategy is to create equity of

access to high quality paediatric hospice palliative care across Ontario.

The

Act also establishes the Paediatric Hospice Palliative Care Advisory Committee,

which is composed of health professionals and family members of children who

have received hospice palliative care. The mandate of the Committee is to provide

recommendations to the Minister on the development, implementation and

effectiveness of the paediatric hospice palliative care strategy for Ontario.

Bill 114 2019

Act to provide for the development of a provincial paediatric hospice

palliative care strategy

Her

Majesty, by and with the advice and consent of the Legislative Assembly of the

Province of Ontario, enacts as follows:

Paediatric

hospice palliative care strategy

(1) The

Minister of Health and Long-Term Care shall develop and implement a paediatric

hospice palliative care strategy for Ontario that is designed to improve access

to and the quality of paediatric hospice palliative care in order to create

equity of access to high quality paediatric hospice palliative care across

Ontario.

Family

supports

(2) Without

limiting the generality of subsection (1), the strategy shall include the

development of targeted supports for families of children receiving hospice

palliative care, including mental health supports.

Timeline

for development of strategy

(3) On

or before the anniversary of the day this Act receives Royal Assent, the

Minister shall ensure that,

(

a) a

report is prepared that sets out the strategy; and

(

b) the

report is published on a website of the Government of Ontario.

Amendments

(4) The

Minister shall continually assess the effectiveness of the strategy in

achieving equity of access to high quality paediatric hospice palliative care

across Ontario and make any amendments to the strategy as necessary.

Same

(5) If

the strategy is amended, the Minister shall ensure that,

(

a) a

report setting out any amended strategy is prepared; and

(

b) the

report is published on a website of the Government of Ontario.

Paediatric

Hospice Palliative Care Advisory Committee

(1) A

Care Advisory Committee” and in French as “Comité consultatif des soins

palliatifs pédiatriques”.

Mandate

of the Committee

(2) The

Committee shall,

(

a) provide

recommendations to the Minister on the development, implementation and

effectiveness of the paediatric hospice palliative care strategy for Ontario;

and

(

b) on

or before May 4 in each year, prepare an annual report setting out any

recommendations made to the Minister over the course of the previous year and

provide the report to the Minister.

Same

(3) As

part of its mandate, the Committee shall,

(

a) review

the recommendations set out in the report entitled “Report of the Paediatric

Palliative Care Work Group” dated October 4, 2011; and

(

b) adopt

those recommendations set out in the report as the Committee considers

appropriate, with or without modifications.

Report

to be public

(4) The

Minister shall,

(

a) ensure

that each annual report of the Committee is published on a website of the

Government of Ontario; and

(

b) table

the report in the Legislative Assembly as soon as possible after receiving it

from the Committee.

Composition

(5) The

Committee shall be composed of no fewer than five and no more than nine members

appointed by the Lieutenant Governor in Council.

Same

(6) The

following rules apply to the composition of the Committee:

1. A

majority of the members of the Committee shall be regulated health

professionals with particular expertise in paediatric hospice palliative care.

2. The

remaining members of the Committee shall be family members of children who are

receiving or who have received hospice palliative care.

3. The

members shall include representation from London, Hamilton, Toronto, Kingston

and Ottawa and such other geographic areas as may be prescribed by the

regulations made under this Act.

Term

(7) Members

shall be appointed for a term of two years and are eligible for reappointment.

Regulations

The Minister

of Health and Long-Term Care may make regulations respecting any matter

necessary or advisable to carry out effectively the intent and purpose of this

Act, and without limiting the generality of the foregoing, may make

regulations,

(

a) prescribing

geographic regions for the purposes of paragraph 3 of subsection 2 (6);

(

b) governing

the procedures of the Paediatric Hospice Palliative Care Advisory Committee,

including procedures for making recommendations to the Minister;

(

c) prescribing

the duties and responsibilities of members of the Committee.

Commencement

This Act comes into force on the day it receives Royal Assent.

Short

title

The

short title of this Act is the Nancy Rose Act

(Paediatric Hospice Palliative Care Strategy), 2019 .

Date Bill stage Event Outcome Committee

May 30, 2019

Second Reading

Ordered referred to Standing Committee

Standing Committee on Finance and Economic Affairs

May 30, 2019

Second Reading

Vote

Carried

May 30, 2019

Second Reading

Debated

May 15, 2019

First Reading

Vote

Carried

Debates and Progress

First Reading

May 15, 2019

Committee

Second Reading

May 30, 2019

Ms. Sandy Shaw, Mr. John Fraser, Mr. Mike Harris, Mr. Sol Mamakwa, Mr. Sam Oosterhoff, Ms. Marit Stiles, Ms. Sara Singh

May 30, 2019

Declared carried. Referred to the Standing Committee on Finance and Economic Affairs.

Committee

Standing Committee on Finance and Economic Affairs

Committee

Third Reading

Royal Assent

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