Rare Disease Day Act, 2016 Harris, Michael — Bill 174 (41st Parliament, 1st Session)

Bill 174, 41-1

Ontario — Bills

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Bill 174, Rare Disease Day Act, 2016

Harris, Michael

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[41] Bill 174 Original (PDF)

Bill 174 2016

Act to proclaim Rare Disease Day

rare disease, also known as an orphan disease or a rare disorder, is any

disease that affects a small percentage of the population. According to the

Canadian Organization for Rare Disorders, one in 12 Canadians are affected by

rare diseases. Many others are at risk, but remain undiagnosed and unaware of

their condition.

There

are over 7,000 rare diseases. They are characterised by a broad diversity of

disorders and symptoms that vary not only from disease to disease but also from

patient to patient suffering from the same disease. Most rare diseases are

genetic and are present throughout a person's entire life, even if symptoms do

not immediately appear.

While

a Rare Disease Day is officially recognized throughout Europe and in the United

States, it is not officially designated in any Province of Canada or by the

Day to raise awareness amongst the general public and decision-makers about

rare diseases and their effect on patients' lives. February 29 is designated as

Rare Disease Day in many jurisdictions, but given the rarity of that date, it

is appropriate to recognize the last day of February in each year as Rare

Disease Day in Ontario.

Therefore

Her Majesty, by and with the advice and consent of the Legislative Assembly of

the Province of Ontario, enacts as follows:

Rare

Disease Day

1. The

last day of February in each year is proclaimed as Rare Disease Day.

Commencement

2. This

Act comes into force on the day it receives Royal Assent.

Short

title

3. The

short title of this Act is the Rare Disease Day Act, 2016 .

EXPLANATORY

NOTE

The

Bill proclaims the last day of February in each year as Rare Disease Day.

Date Bill stage Activity Committee

February 29, 2016

First Reading

Carried

Debates and Progress

First Reading

February 29, 2016

Committee

Second Reading

Committee

Third Reading

Royal Assent

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Document details

Collection	Ontario — Bills
Citation	Bill 174, 41-1
Type	bill
Volume / chapter	p41 s1 bill 174 html
Language	en
Format	html
Source	PROVINCIAL
Identifier	40a2176fb084c603bb0894767b61c4a9ceecc2a6

Source file is stored in the law ingest library (html).