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Bill 129, Rare Disease Strategy Act, 2023

Karpoche, Bhutila

Gélinas, France

Andrew, Jill

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Original

Bill 129 Original (PDF)

EXPLANATORY

NOTE

The

Bill amends the Health Protection and Promotion Act

to require that the Government of Ontario shall, as soon as is practicable,

implement the recommendations set out in the Rare Diseases Working Group

Report, dated March 10, 2017.

Six

months after the day this amendment comes into force, and every six months

thereafter until all the recommendations set out in the report have been

implemented, the Government shall post an update on a website of the Government

of Ontario setting out which recommendations have been implemented and what

steps are being taken to implement any remaining recommendations.

Bill 129 2023

Act to amend the Health Protection and Promotion Act to implement the

recommendations of the Rare Diseases Working Group Report

Preamble

Ontario

currently lacks a rare disease strategy. To address this, a committee was

struck – the Rare Diseases Working Group – which made recommendations in a 2017

report. These recommendations have never been implemented.

Therefore,

His Majesty, by and with the advice and consent of the Legislative Assembly of

the Province of Ontario, enacts as follows:

The Health Protection and Promotion Act is amended

by adding the following section:

Rare

Diseases Working Group Report

20.1

(1) The

Government of Ontario shall, as soon as is practicable, implement the

recommendations set out in the Rare Diseases Working Group Report, dated March

10, 2017.

Same

(2) Six

months after the day this

section comes into force, and every six months

thereafter until all the recommendations set out in the report have been

implemented, the Government shall post an update on a website of the Government

of Ontario setting out which recommendations have been implemented and what

steps are being taken to implement any remaining recommendations.

Commencement

This Act comes into force on the day it receives Royal Assent.

Short

title

The

short title of this Act is the Rare Disease Strategy

Act, 2023 .

Date Bill stage Event Outcome Committee

June 7, 2023

First Reading

Ordered for Second Reading

June 7, 2023

First Reading

Vote

Carried

First Reading

June 7, 2023

Carried