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Bill 255, Sickle Cell Disease Awareness Day and Thalassemia Awareness Day Act, 2021

Khanjin, Hon. Andrea

Cuzzetto, Rudy

Royal Assent received. Statutes of Ontario 2021,

chapter 22

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Status

Debates

Royal Assent

Original

Bill 255 Royal Assent (PDF)

EXPLANATORY NOTE

This Explanatory Note was written as a reader’s aid to Bill 255 and does not form part of the law.

Bill 255 has been enacted as

Chapter 22 of the Statutes of Ontario, 2021.

The Bill proclaims June 19 in each year as Sickle Cell Disease Awareness Day and May 8 in each year as Thalassemia Awareness Day .

Bill 255 2021

An Act to proclaim Sickle Cell Disease Awareness Day and Thalassemia Awareness Day

Preamble

Sickle cell disease and thalassemia are the most common inherited blood disorders in the world. As debilitating genetic diseases, they can cause severe chronic pain, organ dysfunction, bacterial infections, and many other serious complications. The lifespan of individuals with these disorders can be reduced by as much as 30 years.

Approximately five per cent of the world’s population are healthy carriers of the genes for sickle cell disease or thalassemia, with the percentage as high as 25 per cent in some regions. Although Ontario now offers universal newborn screening for these disorders, important gaps remain in our understanding and knowledge about their exact prevalence in our province.

June 19 is recognized annually as World Sickle Cell Day by organizations such as the World Health Organization, African Union, and the United Nations, including the United Nations Educational, Scientific and Cultural Organization. May 8 is recognized annually as World Thalassemia Day throughout the world and by the Thalassemia International Federation.

Proclaiming June 19 as Sickle Cell Disease Awareness Day and May 8 as Thalassemia Awareness Day in Ontario would increase awareness of these blood disorders in our province and dedicate a day to support individuals who have sickle cell disease or thalassemia and their families.

Therefore, Her Majesty, by and with the advice and consent of the Legislative Assembly of the Province of Ontario, enacts as follows:

Sickle Cell Disease Awareness Day

1 June 19 in each year is proclaimed as Sickle Cell Disease Awareness Day.

Thalassemia Awareness Day

2 May 8 in each year is proclaimed as Thalassemia Awareness Day.

Commencement

3 This Act comes into force on the day it receives Royal Assent.

Short title

4 The

short title of this Act is the Sickle Cell Disease Awareness Day and Thalassemia Awareness Day Act, 2021 .

Bill 255 Original (PDF)

EXPLANATORY

NOTE

The

Bill proclaims June 19 in each year as Sickle Cell Disease Awareness Day and

May 8 in each year as Thalassemia Awareness Day .

Bill 255 2021

Act to proclaim Sickle Cell Disease Awareness Day and Thalassemia Awareness Day

Preamble

Sickle

cell disease and thalassemia are the most common inherited blood disorders in

the world. As debilitating genetic diseases, they can cause severe chronic

pain, organ dysfunction, bacterial infections, and many other serious

complications. The lifespan of individuals with these disorders can be reduced

by as much as 30 years.

Approximately

five per cent of the world’s population are healthy carriers of the genes for

sickle cell disease or thalassemia, with the percentage as high as 25 per cent

in some regions. Although Ontario now offers universal newborn screening for

these disorders, important gaps remain in our understanding and knowledge about

their exact prevalence in our province.

June

19 is recognized annually as World Sickle Cell Day by organizations such as the

World Health Organization, African Union, and the United Nations, including the

United Nations Educational, Scientific and Cultural Organization. May 8 is

recognized annually as World Thalassemia Day throughout the world and by the

Thalassemia International Federation.

Proclaiming

June 19 as Sickle Cell Disease Awareness Day and May 8 as Thalassemia Awareness

Day in Ontario would increase awareness of these blood disorders in our

province and dedicate a day to support individuals who have sickle cell disease

or thalassemia and their families.

Therefore,

Her Majesty, by and with the advice and consent of the Legislative Assembly of

the Province of Ontario, enacts as follows:

Sickle

Cell Disease Awareness Day

June

19 in each year is proclaimed as Sickle Cell Disease Awareness Day.

Thalassemia

Awareness Day

May 8 in each year is

proclaimed as Thalassemia Awareness Day.

Commencement

This Act comes into force on the day it receives Royal Assent.

Short

title

The

short title of this Act is the Sickle

Cell Disease Awareness Day and Thalassemia Awareness Day Act, 2021 .

Date Bill stage Event Outcome Committee

June 3, 2021

Royal Assent

Royal Assent received

May 20, 2021

Third Reading

Vote

Carried

May 20, 2021

Third Reading

Debated

April 21, 2021

Second Reading

Ordered for Third Reading

April 21, 2021

Second Reading

Reported without amendment

April 20, 2021

Second Reading

Consideration of a Bill

Standing Committee on Regulations and Private Bills

March 2, 2021

Second Reading

Ordered referred to Standing Committee

Standing Committee on Regulations and Private Bills

March 2, 2021

Second Reading

Vote

Carried

March 2, 2021

Second Reading

Debated

March 1, 2021

First Reading

Vote

Carried

Debates and Progress

First Reading

March 1, 2021

Committee

Second Reading

March 2, 2021

Ms. Andrea Khanjin, Mr. Rudy Cuzzetto, Ms. Jill Andrew, Ms. Mitzie Hunter, Mr. Rod Phillips, Mme France Gélinas, Hon. Stephen Lecce, Mr. Joel Harden

Declared carried. Referred to the Standing Committee on Regulations and Private Bills.

Committee

Standing Committee on Regulations and Private Bills

April 20, 2021

April 21, 2021

Reported to the House without amendment. Ordered for third reading.

Third Reading

May 20, 2021

Ms. Andrea Khanjin, Ms. Laura Mae Lindo

Declared carried.

Royal Assent

Thursday, June 3, 2021

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