Sickle Cell and Thalassemia Care Ontario Act, 2012 Colle, Mike — Bill 105 (40th Parliament, 1st Session)

Bill 105, 40-1

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Bill 105, Sickle Cell and Thalassemia Care Ontario Act, 2012

Colle, Mike

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[40] Bill 105 Original (PDF)

Bill 105 2012

Act to establish Sickle Cell and Thalassemia Care Ontario and to proclaim

Sickle Cell and Thalassemia Awareness Day

Preamble

Sickle

cell and thalassemic disorders are debilitating genetic diseases that can cause

organ dysfunction, limit an individual's quality of life and shorten their

lifespan. There are more and more children and adults in Ontario who have

sickle cell or thalassemic disorders, although there are significant gaps in

research about the prevalence of the disorders. It is estimated that 5 per

cent of the world's population are carriers of genetic traits for sickle cell

or thalassemic disorders.

The

Province of Ontario is leading the way among provinces in recognizing the

seriousness of sickle cell and thalassemic disorders. In 2006, Ontario established screening programs to identify newborns who have sickle cell or other

blood disorders. The next step is to provide provincial co-ordination of

comprehensive healthcare. This is crucial for ensuring that individuals and

families have lifelong access to quality healthcare, genetic counselling and

social support.

Sickle

Cell and Thalassemia Care Ontario is intended to improve the co-ordination of

healthcare resources, promote awareness and education and advocate on behalf of

individuals who have sickle cell or thalassemic disorders and their families.

co-operation with healthcare professionals, hospitals, research institutions

and advocacy groups, Sickle Cell and Thalassemia Care Ontario will develop

provincial strategies for improving the co-ordination and quality of sickle

cell and thalassemia healthcare.

Proclaiming

June 19 as Sickle Cell and Thalassemia Awareness Day in Ontario increases

awareness of these blood disorders and dedicates a day to support individuals

who have sickle cell or thalassemic disorders and their families.

Therefore,

Her Majesty, by and with the advice and consent of the Legislative Assembly of

the Province of Ontario, enacts as follows:

Part I

Sickle Cell and Thalassemia Care Ontario

Definitions

1. In

this Part,

"Corporation"

means Sickle Cell and Thalassemia Care Ontario established under subsection 2

(1); ("Société")

"Minister" means the Minister of Health and Long-Term Care or any other

member of the Executive Council to whom responsibility for the administration

of this Act is assigned or transferred under the Executive Council Act . ("ministre")

Sickle

Cell and Thalassemia Care Ontario established

(1) A

corporation without share capital is hereby established under the name Sickle

drépanocytaires et des thalassémies Ontario in French.

Membership

(2) The members of the

Corporation shall consist of the members of its board of directors.

Objects

of the Corporation

3. The objects of the

Corporation are,

(

a) to

work in co-operation with health professionals, hospitals, research

institutions and advocacy groups to develop strategies for improving the

co-ordination and quality of health care provided in Ontario to individuals who

have sickle cell or thalassemic disorders;

(

b) to

promote awareness of and educate the public about sickle cell and thalassemic

disorders;

(

c) to

improve the co-ordination of healthcare resources for individuals who have

sickle cell or thalassemic disorders by assisting them and their caregivers to

connect with and gain access to healthcare and social support resources;

(

d) to

advocate on behalf of individuals who have sickle cell or thalassemic

disorders;

(

e) to

encourage members of the public to have genetic testing performed to identify

carriers of the sickle cell or thalassemia gene;

(

f) to

assist carriers of the sickle cell or thalassemia gene to gain access to

genetic counselling;

(

g) to

monitor and track the prevalence of sickle cell and thalassemic disorders in Ontario and assess the sufficiency of treatment centres and other healthcare services

available to individuals who have sickle cell or thalassemic disorders;

(

h) to

and territories of Canada to develop comprehensive strategies for the

healthcare of individuals who have sickle cell or thalassemic disorders.

Board

of directors

(1) The

board of directors shall be composed of a minimum of 10 and a maximum of 15

members, appointed by the Lieutenant Governor in Council.

Vacancies

(2) The Lieutenant Governor in Council

may fill any vacancy among the members of the board.

Auditor

(1) The

Corporation shall appoint one or more auditors licensed under the Public Accounting Act, 2004

to audit annually the accounts and financial transactions of the Corporation.

Auditor's

report

(2) The Corporation shall give a copy

of every auditor's report to the Minister.

Minister's

audit

(3) The Minister may require that any

aspect of the affairs of the Corporation be audited by an auditor appointed by

the Minister.

Annual

report

(1) The

Corporation shall give the Minister an annual report on the affairs of the

Corporation for the preceding fiscal year and shall include in the report such

information as the Minister may specify.

Table

report

(2) The Minister shall lay the annual

report before the Assembly if it is in session or, if not, at the next session.

Part II

Sickle Cell and Thalassemia Awareness Day

Awareness

Day

7. June

19 in each year is proclaimed as Sickle Cell and Thalassemia Awareness Day.

Part III

Commencement and

Short Title

Commencement

8. This

Act comes into force on the day it receives Royal Assent.

Short

title

9. The

short title of this Act is the Sickle Cell and Thalassemia Care Ontario Act, 2012 .

EXPLANATORY NOTE

The

Bill establishes Sickle Cell and Thalassemia Care Ontario as a corporation

without share capital. The objects of the Corporation include taking measures to improve

the co-ordination and quality of healthcare for individuals who have sickle

cell or thalassemic disorders and to promote awareness of these disorders.

The

Bill also proclaims June 19 in each year as Sickle Cell and Thalassemia

Awareness Day.

Date Bill stage Activity Committee

June 7, 2012

First Reading

Carried

Debates and Progress

First Reading

June 7, 2012

Committee

Second Reading

Committee

Third Reading

Royal Assent

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Document details

Collection	Ontario — Bills
Citation	Bill 105, 40-1
Type	bill
Volume / chapter	p40 s1 bill 105 html
Language	en
Format	html
Source	PROVINCIAL
Identifier	84369013d31349ef4394f3c40334a4a312588f41

Source file is stored in the law ingest library (html).