p42 s1 bill 255 b255 e.pdf

Ontario — Bills

1ST SESSION, 42ND LEGISLATURE, ONTARIO ELIZABETH II, 2021 Bill

An Act to proclaim Sickle Cell Disease Awareness Day and Thalassemia Awareness Day Co-sponsors: Mr. R. Cuzzetto Ms A. Khanjin Private Members’ Bill 1st Reading March 1, 2021 2nd Reading 3rd Reading Royal Assent Bill

An Act to proclaim Sickle Cell Disease Awareness Day and Thalassemia Awareness Day

Preamble Sickle cell disease and thalassemia are the most common inherited blood disorders in the world. As debilitating genetic diseases, they can cause severe chronic pain, organ dysfunction, bacterial infections, and many other serious complications. The lifespan of individuals with these disorders can be reduced by as much as 30 years. Approximately five per cent of the world’s population are healthy carriers of the genes for sickle cell disease or thalassemia, with the percentage as high as 25 per cent in some regions.

Although Ontario now offers universal newborn screening for these disorders, important gaps remain in our under standing and knowledge about their exact prevalence in our province. June is recognized annually as World Sickle Cell Day by organizations such as the World Health Organization, African Union, and the United Nations, including the United Nations Educati onal, Scientific and Cultural Organization. May is recognized annually as World Thalassemia Day throughout the world and by the Thalassemia International Federation.

Proclaiming June as Sickle Cell Disease Awareness Day and May as Thalassemia Awaren ess Day in Ontario would increase awareness of these blood disorders in our province and dedicate a day to support individuals who have sickle cell disease or thalassemia and their families. Therefore, Her Majesty, by and with the advice and consent of the Legislative Assembly of the Province of Ontario, enacts as follows: Sickle Cell Disease Awareness Day June in each year is proclaimed as Sickle Cell Disease Awareness Day. Thalassemia Awareness Day May in each year is proclaimed as Thalassemia Awareness Day.

Commencement This Act comes into force on the day it receives Royal Assent.

Short title The

short title of this Act is the Sickle Cell Disease Awareness Day and Thalassemia Awareness Day Act, 2021. ______________ EXPLANATORY NOTE The Bill proclaims June in each year as Sickle Cell Disease Awareness Day and May in each year as Thalassemia Awareness Day.

Document details

Collection	Ontario — Bills
Citation	p42 s1 bill 255 b255 e.pdf
Type	bill
Volume / chapter	p42 s1 bill 255 b255 e.pdf
Language	en
Format	pdf
Source	PROVINCIAL
Identifier	d0203026689649d917c9c73bf9728881f864c973

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