Sickle Cell and Thalassemia Care Ontario Act, 2011 Colle, Mike — Bill 165 (39th Parliament, 2nd Session)

Bill 165, 39-2

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Bill 165, Sickle Cell and Thalassemia Care Ontario Act, 2011

Colle, Mike

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[39] Bill 165 Original (PDF)

Bill 165 2011

An Act to

establish Sickle Cell and Thalassemia Care Ontario and to proclaim Sickle Cell

and Thalassemia Awareness Day

Preamble

Sickle

cell and thalassemic disorders are debilitating genetic diseases that can cause

organ dysfunction, limit an individual's quality of life and shorten their

lifespan. There are more and more children and adults in Ontario who have

sickle cell or thalassemic disorders, although there are significant gaps in

research about the prevalence of the disorders. It is estimated that 5 per

cent of the world's population are carriers of genetic traits for sickle cell or

thalassemic disorders.

The

Province of Ontario is leading the way among provinces in recognizing the

seriousness of sickle cell and thalassemic disorders. In 2006, Ontario established screening programs to identify newborns who have sickle cell or other

blood disorders. The next step is to provide provincial co-ordination of comprehensive

healthcare. This is crucial for ensuring that individuals and families have

lifelong access to quality healthcare, genetic counselling and social support.

Sickle

Cell and Thalassemia Care Ontario is intended to improve the co-ordination of

healthcare resources, promote awareness and education and advocate on behalf of

individuals who have sickle cell or thalassemic disorders and their families.

co-operation with healthcare professionals, hospitals, research institutions

and advocacy groups, Sickle Cell and Thalassemia Care Ontario will develop

provincial strategies for improving the co-ordination and quality of sickle

cell and thalassemia healthcare.

Proclaiming

June 19 as Sickle Cell and Thalassemia Awareness Day in Ontario increases

awareness of these blood disorders and dedicates a day to support individuals

who have sickle cell or thalassemic disorders and their families.

Therefore,

Her Majesty, by and with the advice and consent of the Legislative Assembly of

the Province of Ontario, enacts as follows:

Part

Sickle Cell and Thalassemia Care Ontario

Definitions

1. In this Part,

"Corporation" means Sickle Cell and

Thalassemia Care Ontario established under subsection 2 (1); ("Société")

"Minister" means the Minister of

Health and Long-Term Care or any other member of the Executive Council to whom

responsibility for the administration of this Act is assigned or transferred

under the Executive

Council Act . ("ministre")

Sickle Cell and

Thalassemia Care Ontario established

(1) A corporation without

share capital is hereby established under the name Sickle Cell and Thalassemia

thalassémies Ontario in French.

Membership

(2) The members of the

Corporation shall consist of the members of its board of directors.

Objects of the

Corporation

3. The objects of the Corporation are,

(

a) to work in co-operation with health

professionals, hospitals, research institutions and advocacy groups to develop

strategies for improving the co-ordination and quality of health care provided

in Ontario to individuals who have sickle cell or thalassemic disorders;

(

b) to promote awareness of and educate the public

about sickle cell and thalassemic disorders;

(

c) to improve the co-ordination of healthcare

resources for individuals who have sickle cell or thalassemic disorders by

assisting them and their caregivers to connect with and gain access to

healthcare and social support resources;

(

d) to advocate on behalf of individuals who have

sickle cell or thalassemic disorders;

(

e) to encourage members of the public to have

genetic testing performed to identify carriers of the sickle cell or thalassemia

gene;

(

f) to assist carriers of the sickle cell or

thalassemia gene to gain access to genetic counselling;

(

g) to monitor and track the prevalence of sickle

cell and thalassemic disorders in Ontario and assess the sufficiency of

treatment centres and other healthcare services available to individuals who

have sickle cell or thalassemic disorders;

and the governments of the provinces and territories of Canada to develop comprehensive strategies for the healthcare of individuals who have

sickle cell or thalassemic disorders.

Board of

directors

(1) The board of

directors shall be composed of a minimum of 10 and a maximum of 15 members, appointed

by the Lieutenant Governor in Council.

Vacancies

(2) The Lieutenant

Governor in Council may fill any vacancy among the members of the board.

Auditor

(1) The Corporation shall

appoint one or more auditors licensed under the Public Accounting Act, 2004 to audit

annually the accounts and financial transactions of the Corporation.

Auditor's report

(2) The Corporation

shall give a copy of every auditor's report to the Minister.

Minister's audit

(3) The Minister may

require that any aspect of the affairs of the Corporation be audited by an

auditor appointed by the Minister.

Annual report

(1) The Corporation shall

give the Minister an annual report on the affairs of the Corporation for the preceding

fiscal year and shall include in the report such information as the Minister

may specify.

Table report

(2) The Minister shall

lay the annual report before the Assembly if it is in session or, if not, at

the next session.

Part II

Sickle Cell and Thalassemia Awareness Day

Awareness Day

7. June 19 in each year is proclaimed

as Sickle Cell and Thalassemia Awareness Day.

Part III

Commencement and

Short Title

Commencement

8. This

Act comes into force on the day it receives Royal Assent.

Short title

9. The

short title of this Act is the Sickle Cell and Thalassemia Care

Ontario Act, 2011 .

EXPLANATORY NOTE

The

Bill establishes Sickle Cell and Thalassemia Care Ontario as a corporation

without share capital. The objects of the Corporation include taking measures to improve

the co-ordination and quality of healthcare for individuals who have sickle

cell or thalassemic disorders and promote awareness of these disorders.

The

Bill also proclaims June 19 in each year as Sickle Cell and Thalassemia

Awareness Day.

Date Bill stage Activity Committee

March 10, 2011

First Reading

Carried

Debates and Progress

First Reading

March 10, 2011

Committee

Second Reading

Committee

Third Reading

Royal Assent

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Document details

Collection	Ontario — Bills
Citation	Bill 165, 39-2
Type	bill
Volume / chapter	p39 s2 bill 165 html
Language	en
Format	html
Source	PROVINCIAL
Identifier	ee89de69205fb220a555c3932debfceeb942ec27

Source file is stored in the law ingest library (html).