20250ACR_008797CHP INTRODUCED 2025-05-14 PASSED_ASSEMBLY 2025-06-03 PASSED_SENATE 2025-06-19 ENROLLED 2025-06-20 CHAPTERED 2025-06-25 FILED 2025-06-25 2025 ACR CHP CHR 0 Introduced by Assembly Member Nguyen (Coauthors: Assembly Members Addis, Aguiar-Curry, Ahrens, Alanis, Alvarez, Arambula, Ávila Farías, Bains, Bauer-Kahan, Bennett, Berman, Boerner, Bonta, Bryan, Calderon, Caloza, Carrillo, Castillo, Chen, Connolly, Davies, DeMaio, Dixon, Elhawary, Ellis, Flora, Fong, Gabriel, Gallagher, Garcia, Gipson, Mark González, Hadwick, Haney, Harabedian, Hart, Hoover, Irwin, Jackson, Kalra, Krell, Lackey, Lowenthal, Macedo, McKinnor, Muratsuchi, Ortega, Pacheco, Papan, Patel, Patterson, Pellerin, Petrie-Norris, Quirk-Silva, Ramos, Ransom, Rivas, Celeste Rodriguez, Michelle Rodriguez, Rogers, Blanca Rubio, Sanchez, Schiavo, Schultz, Sharp-Collins, Solache, Soria, Stefani, Ta, Tangipa, Valencia, Wallis, Ward, Wicks, Wilson, and Zbur) LEAD_AUTHOR ASSEMBLY Nguyen COAUTHOR ASSEMBLY Addis COAUTHOR ASSEMBLY Aguiar-Curry COAUTHOR ASSEMBLY Ahrens COAUTHOR ASSEMBLY Alanis COAUTHOR ASSEMBLY Alvarez COAUTHOR ASSEMBLY Arambula COAUTHOR ASSEMBLY Ávila Farías COAUTHOR ASSEMBLY Bains COAUTHOR ASSEMBLY Bauer-Kahan COAUTHOR ASSEMBLY Bennett COAUTHOR ASSEMBLY Berman COAUTHOR ASSEMBLY Boerner COAUTHOR ASSEMBLY Bonta COAUTHOR ASSEMBLY Bryan COAUTHOR ASSEMBLY Calderon COAUTHOR ASSEMBLY Caloza COAUTHOR ASSEMBLY Carrillo COAUTHOR ASSEMBLY Castillo COAUTHOR ASSEMBLY Chen COAUTHOR ASSEMBLY Connolly COAUTHOR ASSEMBLY Davies COAUTHOR ASSEMBLY DeMaio COAUTHOR ASSEMBLY Dixon COAUTHOR ASSEMBLY Elhawary COAUTHOR ASSEMBLY Ellis COAUTHOR ASSEMBLY Flora COAUTHOR ASSEMBLY Fong COAUTHOR ASSEMBLY Gabriel COAUTHOR ASSEMBLY Gallagher COAUTHOR ASSEMBLY Garcia COAUTHOR ASSEMBLY Gipson COAUTHOR ASSEMBLY Mark González COAUTHOR ASSEMBLY Hadwick COAUTHOR ASSEMBLY Haney COAUTHOR ASSEMBLY Harabedian COAUTHOR ASSEMBLY Hart COAUTHOR ASSEMBLY Hoover COAUTHOR ASSEMBLY Irwin COAUTHOR ASSEMBLY Jackson COAUTHOR ASSEMBLY Kalra COAUTHOR ASSEMBLY Krell COAUTHOR ASSEMBLY Lackey COAUTHOR ASSEMBLY Lowenthal COAUTHOR ASSEMBLY Macedo COAUTHOR ASSEMBLY McKinnor COAUTHOR ASSEMBLY Muratsuchi COAUTHOR ASSEMBLY Ortega COAUTHOR ASSEMBLY Pacheco COAUTHOR ASSEMBLY Papan COAUTHOR ASSEMBLY Patel COAUTHOR ASSEMBLY Patterson COAUTHOR ASSEMBLY Pellerin COAUTHOR ASSEMBLY Petrie-Norris COAUTHOR ASSEMBLY Quirk-Silva COAUTHOR ASSEMBLY Ramos COAUTHOR ASSEMBLY Ransom COAUTHOR ASSEMBLY Rivas COAUTHOR ASSEMBLY Celeste Rodriguez COAUTHOR ASSEMBLY Michelle Rodriguez COAUTHOR ASSEMBLY Rogers COAUTHOR ASSEMBLY Blanca Rubio COAUTHOR ASSEMBLY Sanchez COAUTHOR ASSEMBLY Schiavo COAUTHOR ASSEMBLY Schultz COAUTHOR ASSEMBLY Sharp-Collins COAUTHOR ASSEMBLY Solache COAUTHOR ASSEMBLY Soria COAUTHOR ASSEMBLY Stefani COAUTHOR ASSEMBLY Ta COAUTHOR ASSEMBLY Tangipa COAUTHOR ASSEMBLY Valencia COAUTHOR ASSEMBLY Wallis COAUTHOR ASSEMBLY Ward COAUTHOR ASSEMBLY Wicks COAUTHOR ASSEMBLY Wilson COAUTHOR ASSEMBLY Zbur Relative to Amyotrophic Lateral Sclerosis Awareness Month.

Amyotrophic Lateral Sclerosis Awareness Month Amyotrophic Lateral Sclerosis Awareness Month. This measure would proclaim the month of May as Amyotrophic Lateral Sclerosis Awareness Month in California. NO

WHEREAS, Amyotrophic Lateral Sclerosis (ALS) is a progressive neurodegenerative disease that affects nerve cells in the brain and the spinal cord; and

WHEREAS, The life expectancy for an individual with ALS is between two and five years after the date on which the individual receives an ALS diagnosis; and

WHEREAS, ALS occurs throughout the world, with no racial, ethnic, gender, or socioeconomic boundaries; and

WHEREAS, Approximately 2,400 Californians are afflicted with ALS at any time; and

WHEREAS, The cause of ALS is unknown in up to percent of cases; and

WHEREAS, Approximately percent of cases have a strong known genetic driver; and

WHEREAS, On average, the period between the date an individual first experiences symptoms of ALS and the date the individual is diagnosed with ALS is more than one year; and

WHEREAS, The onset of ALS often involves muscle weakness or stiffness and the progression of ALS results in the further weakening, wasting, and paralysis of the muscles of the limbs and trunk and the muscles that control vital functions, such as speech, swallowing, and breathing; and

WHEREAS, ALS can strike individuals of any age, but predominantly strikes adults; and

WHEREAS, It is estimated that tens of thousands of individuals in the United States have ALS at any given time; and

WHEREAS, Based on studies of the population, slightly more than 5,600 individuals are diagnosed with ALS each year, and approximately individuals are diagnosed with ALS each day, in the United States; and

WHEREAS, Between and 2040, the number of ALS cases around the world is expected to increase by nearly percent; and

WHEREAS, The majority of individuals with ALS die of respiratory failure; and

WHEREAS, In the United States, military veterans are significantly more likely to be diagnosed with ALS than the general public; and

WHEREAS, As of the date of introduction of this resolution, there is no cure for ALS; and

WHEREAS, The spouses, children, and family members of individuals living with ALS support these individuals with love, day-to-day care, and more; and

WHEREAS, An individual with ALS or their caregivers can be required to bear significant costs for medical care, equipment, and home care services as the disease progresses;

now, therefore,

be it resolved Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature of the State of California hereby proclaims May as Amyotrophic Lateral Sclerosis Awareness Month in California; and be it further Resolved, That the Legislature affirms its dedication to (1) ensuring that individuals with ALS have access to effective treatments as soon as possible, (2) identifying the risk factors and causes of ALS to prevent new cases, (3) empowering individuals with ALS to engage with the world in the way they want, (4) reducing the physical, emotional, and financial burdens of living with ALS, and (5) ensuring all individuals with ALS and their caregivers receive high quality services and supports that benefit them; and be it further Resolved, That the Legislature commends the dedication of the family, caregivers, friends, organizations, volunteers, researchers, providers, and caregiving professionals across the nation that are working to improve the quality and length of life for those living with ALS and the development of treatments and cures that reach patients as soon as possible; and be it further Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.