20250SCR_003397CHP INTRODUCED 2025-03-04 PASSED_ASSEMBLY 2025-06-27 PASSED_SENATE 2025-05-27 ENROLLED 2025-07-01 CHAPTERED 2025-07-03 FILED 2025-07-03 2025 SCR CHP CHR 0 Introduced by Senator Padilla (Coauthors: Senators Alvarado-Gil, Ochoa Bogh, Seyarto, Umberg, Valladares, and Weber Pierson) LEAD_AUTHOR SENATE Padilla COAUTHOR SENATE Alvarado-Gil COAUTHOR SENATE Ochoa Bogh COAUTHOR SENATE Seyarto COAUTHOR SENATE Umberg COAUTHOR SENATE Valladares COAUTHOR SENATE Weber Pierson Relative to GM1 Gangliosidosis Awareness Day. GM1 Gangliosidosis Awareness Day GM1 Gangliosidosis Awareness Day. This measure would declare May 23, 2025, as GM1 Gangliosidosis Awareness Day in California. NO

WHEREAS, GM1 Gangliosidosis is a rare inherited disease that results in neurodegeneration and a progressive loss of abilities until death, leaving children, adolescents, and adults impaired with significant physical and developmental disabilities; and

WHEREAS, GM1 Gangliosidosis is severely underdiagnosed and misdiagnosed and occurs in only one in every 100,000 to 200,000 live births; and

WHEREAS, Lack of public awareness and visibility of GM1 Gangliosidosis contributes to underdiagnosis and difficulties in accessing specialized services and proper rehabilitation and support; and

WHEREAS, Early diagnosis of GM1 Gangliosidosis is important to ensure timely management of clinical complications, genetic counseling, and, when available, treatment and therapeutic remedies; and

WHEREAS, The goal is to raise awareness and increase the accurate and timely diagnosis of this rare inherited lysosomal disorder known as GM1 Gangliosidosis;

now, therefore,

be it Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature declares May 23, 2025, as GM1 Gangliosidosis Awareness Day in California; and be it further Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.