20250SCR_004397CHP INTRODUCED 2025-03-24 PASSED_ASSEMBLY 2025-05-23 PASSED_SENATE 2025-04-21 ENROLLED 2025-05-27 CHAPTERED 2025-05-29 FILED 2025-05-29 2025 SCR CHP CHR 0 Introduced by Senator Archuleta LEAD_AUTHOR SENATE Archuleta Relative to Parkinson’s Awareness Month. Parkinson’s Awareness Month Parkinson’s Disease Awareness Month. This measure would proclaim the month of April as Parkinson’s Disease Awareness Month in California. NO

WHEREAS, Parkinson’s disease is a chronic, progressive neurological disease and is the second most common neurodegenerative disease behind Alzheimer’s disease in the United States; and

WHEREAS, The symptoms of Parkinson’s disease vary from person to person and can include tremors, slowness of movement and rigidity, gait and balance difficulties, speech and swallowing disturbances, cognitive impairment and dementia, mood disorders, and a variety of other nonmotor symptoms; and

WHEREAS, Parkinson’s disease is the fastest growing neurological disease in the United States; and

WHEREAS, It is estimated that 90,000 individuals are diagnosed annually with Parkinson’s disease in North America, 50 percent higher than research previously suggested; and

WHEREAS, There is inadequate data on the incidence and prevalence of Parkinson’s disease, but it is estimated to affect nearly 1,600,000 people in the United States, and that number is expected to more than double by 2040; and

WHEREAS, Parkinson’s disease is the 15th leading cause of death in the United States, according to the federal Centers for Disease Control and Prevention; and

WHEREAS, There are millions of Americans who are caregivers, family members, and friends greatly impacted by Parkinson’s disease; and

WHEREAS, There is no known cure or drug to slow or halt the progression of the disease, and available treatments are limited in their ability to address patients’ medical needs and remain effective over time; and

WHEREAS, Volunteers, researchers, caregivers, and medical professionals are working to improve the quality of life of people living with Parkinson’s disease and their families; and

WHEREAS, It is estimated that Parkinson’s disease costs $52 billion per year, of which the federal government shoulders $25 billion, leaving American families to cover the remaining amount; and

WHEREAS, According to the Michael J. Fox Foundation for Parkinson’s Research, over 107,000 people in California have Parkinson’s disease, costing the state $5.8 billion annually for direct and indirect health care costs; and

WHEREAS, The California Parkinson’s Disease Registry was created in through the state budget and became operational in 2018. The California Parkinson’s Disease Registry has become a model for the nation and the world as it collects patient information that can help improve our understanding and treatment of Parkinson’s disease; and

WHEREAS, Now expanded to include more data on related diseases, the California Neurodegenerative Disease Registry has collected hundreds of thousands of electronic records and formed reporting partnerships with more than reporting entities, including health groups such as Sutter Health, Kaiser Permanente, Dignity Health, Scripps Health, and Stanford Health Care, allowing patient data to automatically be sent from the physician’s office to the state. After the data is processed by the State Department of Public Health, it is made available to research institutions in an effort to improve treatments and eventually find a cure for the disease; and

WHEREAS, Research suggests the cause of Parkinson’s disease is a combination of genetic and environmental factors, but the exact cause in most individuals is still unknown; and

WHEREAS, Over the last 20 years, the Michael J. Fox Foundation for Parkinson’s Research has raised over $310,000,000 for Parkinson’s disease research in California; and

WHEREAS, In 2010, the Michael J. Fox Foundation launched its landmark research study, the Parkinson’s Progression Markers Initiative (PPMI), to better understand Parkinson’s disease and advance new treatments; and

WHEREAS, The Michael J. Fox Foundation has provided $2,000,000 annually each to the University of California at San Francisco, the University of California at San Diego, and the University of Southern California to participate in the PPMI study; and

WHEREAS, As a result of the PPMI study, in April 2023, the Michael J. Fox Foundation announced the validation of the first-ever biomarker for Parkinson’s disease. For the first time in the living body, researchers can objectively detect an abnormal protein in individuals with Parkinson’s disease, and those not yet diagnosed with Parkinson’s disease who do not show clinical symptoms. This discovery represents one of the most prominent breakthroughs in brain disease research of the past decade; and

WHEREAS, Increased research, education, and community support services are needed to find more effective treatments and to provide access to quality care to those living with the disease today;

now, therefore,

be it Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature proclaims the month of April as Parkinson’s Disease Awareness Month in California; and be it further Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.