Florida Senate - 2024 SB 186 By Senator Brodeur 10-00115A-24 2024186__ Page 1 of 4 CODING: Words stricken are deletions; words underlined are additions. A bill to be entitled 1

An act relating to a progressive supranuclear palsy 2 and other neurodegenerative diseases policy workgroup; 3 providing a

short title; creating s. 408.0622, F.S.; 4 requiring the Secretary of Health Care Administration, 5 in conjunction with the State Surgeon General, to 6 establish a progressive supranuclear palsy and other 7 neurodegenerative diseases policy workgroup; providing 8 for duties, membership, and meetings of the workgroup; 9 requiring the secretary to submit annual reports and a 10 final report by a specified date to the Governor and 11 the Legislature; providing an effective date. 12 13 Be It Enacted by the Legislature of the State of Florida: 14 15

Section 1. This act may be cited as the “Justo R. Cortes 16 Progressive Supranuclear Palsy Act.” 17

Section

Section 408.0622, Florida Statutes, is created 18 to read: 19 408.0622 Progressive supranuclear palsy and other 20 neurodegenerative diseases policy workgroup.— 21

(1) The Secretary of Health Care Administration, in 22 conjunction with the State Surgeon General, shall establish a 23 progressive supranuclear palsy and other neurodegenerative 24 diseases policy workgroup. 25

(2) The workgroup shall: 26 (

a) Identify the aggregate number of people in the state 27 diagnosed with progressive supranuclear palsy and other 28 neurodegenerative diseases annually. 29 Florida Senate - 2024 SB 186 10-00115A-24 2024186__ Page 2 of 4 CODING: Words stricken are deletions; words underlined are additions. (

b) Identify how data is collected regarding diagnoses of 30 progressive supranuclear palsy and other neurodegenerative 31 diseases and adverse health outcomes associated with such 32 conditions. 33 (

c) Identify how progressive supranuclear palsy and other 34 neurodegenerative diseases impact the lives of people in the 35 state. 36 (

d) Identify the standard of care for the surveillance, 37 detection, and treatment of progressive supranuclear palsy and 38 other neurodegenerative diseases. 39 (

e) Identify emerging treatments, therapies, and research 40 relating to progressive supranuclear palsy and other 41 neurodegenerative diseases. 42 (

f) Develop a risk surveillance system to help health care 43 providers identify patients who may be at a higher risk of 44 developing progressive supranuclear palsy and other 45 neurodegenerative diseases. 46 (

g) Develop policy recommendations to help improve patient 47 awareness of progressive supranuclear palsy and other 48 neurodegenerative diseases. 49 (

h) Develop policy recommendations to help improve 50 surveillance and detection of patients who may be at a higher 51 risk of being diagnosed with progressive supranuclear palsy and 52 other neurodegenerative diseases in licensed health care 53 facilities, including hospitals, nursing homes, assisted living 54 facilities, residential treatment facilities, and ambulatory 55 surgical centers. 56 (

i) Develop policy recommendations relating to guidelines 57 that affect the standard of care for patients with progressive 58 Florida Senate - 2024 SB 186 10-00115A-24 2024186__ Page 4 of 4 CODING: Words stricken are deletions; words underlined are additions. Senate, and the Speaker of the House of Representatives by 88 January 4, 2026. 89

Section 3. This act shall take effect July 1, 2024. 90